Sunday, August 8, 2010

Fix Me

What I wouldn't give to be fixed...I feel so broken, unrepairable. I feel stuck in reverse...especially when it comes to my face. The surgeons are doing all they can to fix me. But there is only so much they can do.

Another surgery done and over of many attempts to fix my face. I wish I could tell you this surgery was one step closer towards healing. Unfortunately, during surgery the surgeon made a discovery...the bone in my face had a chip in it. It was alarming enough for him to pull in my surgical oncologist to take a look. The bone fragment is either from cancer, an infection or simply from radiation. We are still waiting for the biopsy results. While this may be answer as to why the skin on my face continue to break open, I am feeling very discouraged and overwhelmed knowing I have a long way to go before this problem is fixed. In the meantime, next week I am meeting with an Infectious Disease doctor to find the best way to treat the bone if it is infected. I will also start undergoing hyperbaric oxygen therapy treatments. Hyperbaric Oxygen Therapy (HBOT) is the breathing of high concentrations of oxygen in an environment with greater than normal atmospheric pressure. The effect of this is a greater amount of oxygen dissolved in the blood than can be achieved normally. This increased amount of dissolved oxygen has a variety of effects that result in an improved ability to heal. We have discussed this option at length for the past few months. Finding the chip in my bone helped the surgeons come to the conclusion that now was the time to start the hyperbaric oxygen therapy treatments. In order to be prepared for the HBOT treatments, I had to have tubes put in my ears. I will not be able to relieve the pressure in my ears that normally takes place during the treatments as it may blow a hole in my face again. My surgeon put the tubes in during my post-op appointment on Friday. This was NOT a pleasant experience. I now understand why this is normally done while a patient is under anesthesia.
Please continue to pray for healing. Pray that this will be the last surgery. Pray that the hyperbaric treatments will work. Pray that whatever it is that is causing my bone to break down will be resolved. Pray that God will give my surgeons the solution to fix me.



Jeremy, Michelle, and Girls said...


Prayers for your comfort, healing, and peace of mind are coming your way. As always, I'm amazed at your ability to appear calm when facing the feelings that you have. Always know we're around the corner for whatever you, the girls, & Jason need.


Anonymous said...

I will keep praying Sue! Let us know if there is anything we can do.


Anonymous said...

I will continue to pray for healing for you
and for Jason and the girls. I love you!

Maryann Raese

Anonymous said...

I thought of you so much while I was in MN. I hope to see you the next time I am back.... at that point, I hope to find you surgery, cancer, and infection-free! You continue to go thru so much and I can't imagine the frustration you must feel. Just know that we love you and we are amazed by your strength. Much love to you, Jason, and the girls.

Anonymous said...

It was so good to see you tonight, if only briefly. You are an amazing woman; you are so strong in this time in your life. You are always in my thoughts and prayers...I miss our Bible Study times...maybe some day we can get back to meeting. Your girls looked so beautiful tonight...and Jason looked well also; God has his hand on you and your family...I believe that. Love you Sue...Kim