It's been a long couple of days and Sue had wanted to try and send a note to all of you, but she hasn't been able to yet. Yesterday, went okay for her. Her swelling didn't go up more, as they had expected and she was able to move from the ICU to a general nursing floor. We had thought that this would provide her with a little less activity in her room, from a nursing standpoint, but it actually seems as though there are more people coming and going now. She has actually gotten a little less rest than in the ICU, I would say. This is really frustrating her.
I believe that her lack of rest really hit her today. She has really been down and wants to 'just be done with this'. They have been poking, prodding, and bugging her non-stop. I can see that she feels helpless and though she has no control over the situation. It is painful for me to see her this way and I feel a little helpless at the same time.
Her biggest complaint right now, from a medical standpoint, is that her trach is very uncomfortable and she feels as though she can't get any full breaths of air. They want to switch it out to a smaller size, but she is fearful of the discomfort this will cause. I do hope that they are able to do the change and that it is comfortable for her. I believe that this would allow her to be more comfortable as it would allow some air to come in via her mouth and nose, as well as the trach. This is because while the air opening is actually the same size as the current trach, the walls of the new trach aren't as wide and don't block off as much of the airway.
Other than that, the doctors still are happy with the surgical sites and are hoping that she may be a bit more active tomorrow. We need to start getting her out of bed a bit more and they may want her to actually put a little weight on her leg tomorrow.
Just pray that she gets some good rest tonight and that the new trach will provide her with more comfort. I think these two things would make a world of difference for her.
We thank you for all of your thoughts and prayers.